The 20 Best Hydranencephaly Doctors Near Me in Saint Louis, MO

Find the Top Hydranencephaly Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 22 doctor with experience in Hydranencephaly near Saint Louis, MO. Of these, 17 are Experienced and 5 are Advanced.

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22 providers found
    Experienced in Hydranencephaly
    Nurse Practitioner
    Experienced in Hydranencephaly
    Nurse Practitioner
    Referral may be required

    SSM Health Cardinal Glennon Pediatrics Specialty Services - Grand Boulevard

    1465 S. Grand Blvd., 
    St. Louis, MO 
     (2.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Kathy Judkins is a Nurse Practitioner practicing medicine in St. Louis, Missouri. Judkins, NP is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. Her clinical expertise encompasses Agyria Pachygyria Polymicrogyria, Coach Syndrome, VLDLR-Associated Cerebellar Hypoplasia, and Hydranencephaly. Judkins, NP is board certified in Missouri State Board Of Nursing , Pediatric Nursing Certification Board, Drug Enforcement Administration , Missouri Dept Of Health/Narcotics&Dangerous Drugs , and Illinois Department Of Financial & Professional Regulation . Judkins, NP is currently accepting new patients.

    Experienced in Hydranencephaly
    Nurse Practitioner
    Experienced in Hydranencephaly
    Nurse Practitioner
    Referral may be required

    SSM Health Cardinal Glennon Pediatrics

    1465 S. Grand Blvd., 
    St. Louis, MO 
     (2.2 miles away)
    Languages Spoken:
    English

    Emily Ahmad is a Nurse Practitioner practicing medicine in St. Louis, Missouri. Ahmad, NP is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. Her clinical expertise encompasses Hydranencephaly, Lissencephaly 1, Agyria Pachygyria Polymicrogyria, and Lissencephaly 2. Ahmad, NP is board certified in Missouri State Board Of Nursing , Illinois Department Of Financial & Professional Regulation , and Pediatric Nursing Certification Board.

    Experienced in Hydranencephaly
    Nurse Practitioner
    Experienced in Hydranencephaly
    Nurse Practitioner
    Referral may be required

    SSM Health Cardinal Glennon Pediatrics

    1465 S. Grand Blvd., 
    St. Louis, MO 
     (2.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Beth Downey is a Nurse Practitioner practicing medicine in St. Louis, Missouri. Downey, NP is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. Her clinical expertise encompasses VLDLR-Associated Cerebellar Hypoplasia, Agyria Pachygyria Polymicrogyria, Lissencephaly 1, and Bilateral Perisylvian Polymicrogyria. Downey, NP is board certified in American Nurses Credentialing Center-Verification , Illinois Department Of Financial & Professional Regulation , and Missouri State Board Of Nursing. Downey, NP is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Hydranencephaly
    Nurse Practitioner
    Experienced in Hydranencephaly
    Nurse Practitioner
    Referral may be required

    St. Louis Children's Hospital

    1 Childrens Pl, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English

    Emily Zielinski is a Nurse Practitioner practicing medicine in Saint Louis, Missouri. Zielinski, NP is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Neurogenic Bowel, Lissencephaly 2, Bilateral Perisylvian Polymicrogyria, and Agyria Pachygyria Polymicrogyria.

    Experienced in Hydranencephaly
    Nurse Practitioner
    Experienced in Hydranencephaly
    Nurse Practitioner
    Referral may be required

    St. Louis Children's Hospital

    1 Childrens Pl, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English

    Tiffany Hammerschmidt is a Nurse Practitioner practicing medicine in Saint Louis, Missouri. Hammerschmidt, NP is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. Her clinical expertise encompasses Neurogenic Bowel, Lissencephaly 2, VLDLR-Associated Cerebellar Hypoplasia, and Hydranencephaly.

    Experienced in Hydranencephaly
    Pediatric Pulmonology
    Experienced in Hydranencephaly
    Pediatric Pulmonology
    Referral may be required

    St. Louis Children's Hospital

    1 Childrens Pl, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Manuel Silva-Carmona is a Pediatric Pulmonologist practicing medicine in Saint Louis, Missouri. Dr. Silva-Carmona is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. His clinical expertise encompasses Cystic Fibrosis, Koolen De Vries Syndrome, Congenital Unilateral Pulmonary Hypoplasia, and Bilateral Perisylvian Polymicrogyria. Dr. Silva-Carmona is currently accepting new patients.

    Experienced in Hydranencephaly
    Experienced in Hydranencephaly
    Referral may be required

    St. Louis Children's Hospital

    1 Childrens Pl, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English

    Afia Twumasi is a Pediatrics provider practicing medicine in Saint Louis, Missouri. Dr. Twumasi is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Cerebral Hypoxia, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Rasmussen Encephalitis, and Bilateral Perisylvian Polymicrogyria.

    Experienced in Hydranencephaly
    Nurse Practitioner
    Experienced in Hydranencephaly
    Nurse Practitioner
    Referral may be required

    Washington University Pediatric Genetics

    1 Childrens Pl Ste 2D, 
    Saint Louis, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Lacey Bender is a Nurse Practitioner practicing medicine in Saint Louis, Missouri. Bender, NP is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. Her clinical expertise encompasses Orofaciodigital Syndrome 6, Lissencephaly 1, Hydranencephaly, and Lissencephaly 2.

    Advanced in Hydranencephaly
    Advanced in Hydranencephaly
    Referral may be required

    Ranken Jordan Pediatric Bridge Hospital

    11365 Dorsett Rd, 
    Maryland Heights, MO 
     (13.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Lynda Brady is a Pediatrics provider practicing medicine in Maryland Heights, Missouri. Dr. Brady is rated as an Advanced provider by MediFind in the treatment of Hydranencephaly. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Agyria Pachygyria Polymicrogyria, Orofaciodigital Syndrome 6, Bilateral Perisylvian Polymicrogyria, and Hydranencephaly. Dr. Brady is currently accepting new patients.

    Advanced in Hydranencephaly
    Pediatric Cardiology
    Advanced in Hydranencephaly
    Pediatric Cardiology
    Referral may be required

    Ranken Jordan Pediatric Bridge Hospital

    11365 Dorsett Rd, 
    Maryland Heights, MO 
     (13.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Rod Pellenberg is a Pediatric Cardiologist practicing medicine in Maryland Heights, Missouri. Dr. Pellenberg is rated as an Advanced provider by MediFind in the treatment of Hydranencephaly. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Orofaciodigital Syndrome 6, VLDLR-Associated Cerebellar Hypoplasia, Coach Syndrome, and Lissencephaly 1. Dr. Pellenberg is currently accepting new patients.

    Advanced in Hydranencephaly
    Advanced in Hydranencephaly
    Referral may be required

    Ranken Jordan Pediatric Bridge Hospital

    11365 Dorsett Rd, 
    Maryland Heights, MO 
     (13.1 miles away)
    Languages Spoken:
    English, Spanish

    Rosa Suarez-Solar is a Pediatrics provider practicing medicine in Maryland Heights, Missouri. Dr. Suarez-Solar is rated as an Advanced provider by MediFind in the treatment of Hydranencephaly. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Bilateral Perisylvian Polymicrogyria, Lissencephaly 1, Hydranencephaly, and VLDLR-Associated Cerebellar Hypoplasia.

    Advanced in Hydranencephaly
    Advanced in Hydranencephaly
    Referral may be required

    Office

    11365 Dorsett Rd, 
    Maryland Heights, MO 
     (13.1 miles away)
    Languages Spoken:
    English

    Jennifer Kaufman is a Pediatrics provider practicing medicine in Maryland Heights, Missouri. Dr. Kaufman is rated as an Advanced provider by MediFind in the treatment of Hydranencephaly. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Lissencephaly 1, Lissencephaly 2, Orofaciodigital Syndrome 6, and VLDLR-Associated Cerebellar Hypoplasia.

    Advanced in Hydranencephaly
    Nurse Practitioner
    Advanced in Hydranencephaly
    Nurse Practitioner
    Referral may be required
    621 S New Ballas Rd, Ste 140a, 
    Saint Louis, MO 
     (13.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Sarah Shoemake is a Nurse Practitioner practicing medicine in Saint Louis, Missouri. Shoemake, NP is rated as an Advanced provider by MediFind in the treatment of Hydranencephaly. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses VLDLR-Associated Cerebellar Hypoplasia, Bilateral Perisylvian Polymicrogyria, Orofaciodigital Syndrome 6, and Agyria Pachygyria Polymicrogyria. Shoemake, NP is currently accepting new patients.

    Experienced in Hydranencephaly
    Pediatrics | Physiatry
    Experienced in Hydranencephaly
    Pediatrics | Physiatry
    Referral may be required
    11365 Dorsett Road, 
    Maryland Heights, MO 
     (13.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Amy Zimmermann is a Pediatrics specialist and a Physiatrist practicing medicine in Maryland Heights, Missouri. Dr. Zimmermann is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Focal Dystonia, Cerebral Palsy, Hydranencephaly, and Orofaciodigital Syndrome 6. Dr. Zimmermann is board certified in American Board Of Physical Medicine And Rehabilitation/Pediatric Rehabilitation , American Board Of Physical Medicine & Rehabilitation , Missouri Dept Of Health/Narcotics&Dangerous Drugs , Missouri State Board Of Registration, and Drug Enforcement Administration . Dr. Zimmermann is currently accepting new patients.

    Experienced in Hydranencephaly
    Nurse Practitioner
    Experienced in Hydranencephaly
    Nurse Practitioner
    Referral may be required
    11365 Dorsett Road, 
    Maryland Heights, MO 
     (13.0 miles away)
    Languages Spoken:
    English

    Emily Melick is a Nurse Practitioner practicing medicine in Maryland Heights, Missouri. Melick, NP is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Neurogenic Bowel, Coach Syndrome, Lissencephaly 1, and Agyria Pachygyria Polymicrogyria.

    Experienced in Hydranencephaly
    Physiatry
    Experienced in Hydranencephaly
    Physiatry
    Referral may be required
    11365 Dorsett Road, 
    Maryland Heights, MO 
     (13.0 miles away)
    Languages Spoken:
    English, Russian
    Accepting New Patients

    Eugene Evra is a Physiatrist practicing medicine in Maryland Heights, Missouri. Dr. Evra is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Chronic Subdural Hematoma, Stroke, Subdural Hematoma, and Liver Failure. Dr. Evra is board certified in American Board Of Physical Medicine & Rehabilitation , Missouri Dept Of Health/Narcotics&Dangerous Drugs , Missouri State Board Of Registration, and Drug Enforcement Administration . Dr. Evra is currently accepting new patients.

    Experienced in Hydranencephaly
    Nurse Practitioner
    Experienced in Hydranencephaly
    Nurse Practitioner
    Referral may be required
    11365 Dorsett Rd, 
    Maryland Heights, MO 
     (13.1 miles away)
    Languages Spoken:
    English

    Karen Sepe is a Nurse Practitioner practicing medicine in Maryland Heights, Missouri. Sepe, NP is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. Her clinical expertise encompasses Lissencephaly 2, Hydranencephaly, VLDLR-Associated Cerebellar Hypoplasia, and Coach Syndrome.

    Experienced in Hydranencephaly
    Experienced in Hydranencephaly
    Referral may be required

    Office

    11365 Dorsett Rd, 
    Maryland Heights, MO 
     (13.1 miles away)
    Languages Spoken:
    English

    Dawn Mcnamee is a Pediatrics provider practicing medicine in Maryland Heights, Missouri. Dr. Mcnamee is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Neurogenic Bowel, Hydranencephaly, Lissencephaly 2, and Orofaciodigital Syndrome 6.

    Experienced in Hydranencephaly
    Experienced in Hydranencephaly
    Referral may be required

    Ranken Jordan Pediatric Bridge Hospital

    11365 Dorsett Rd, 
    Maryland Heights, MO 
     (13.1 miles away)
    Languages Spoken:
    English

    Jennifer Leary is a Pediatrics provider practicing medicine in Maryland Heights, Missouri. Dr. Leary is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. Her clinical expertise encompasses Neurogenic Bowel, VLDLR-Associated Cerebellar Hypoplasia, Lissencephaly 1, and Lissencephaly 2.

    Experienced in Hydranencephaly
    Experienced in Hydranencephaly
    Referral may be required

    Office

    11365 Dorsett Rd, 
    Maryland Heights, MO 
     (13.1 miles away)
    Languages Spoken:
    English

    Connie Simmons is a Pediatrics provider practicing medicine in Maryland Heights, Missouri. Dr. Simmons is rated as an Experienced provider by MediFind in the treatment of Hydranencephaly. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Neurogenic Bowel, Bilateral Perisylvian Polymicrogyria, Orofaciodigital Syndrome 6, and Coach Syndrome.

    Showing 1-20 of 22

    Last Updated: 09/26/2026

    What is the definition of Hydranencephaly?

    Hydranencephaly is a rare condition in which the brain's cerebral hemispheres are absent and replaced by sacs filled with cerebrospinal fluid (CSF). Affected infants may appear and act normal at birth, but irritability and hypertonia often develop within a few weeks. Other signs and symptoms may include seizures, hydrocephalus, visual impairment, lack of growth, deafness, blindness, paralysis, and intellectual disabilities.

    When should I see a Hydranencephaly doctor near Saint Louis, MO?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Hydranencephaly doctor near Saint Louis, MO?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Hydranencephaly doctors near Saint Louis, MO?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Hydranencephaly doctors near Saint Louis, MO?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Hydranencephaly doctor near Saint Louis, MO?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Hydranencephaly doctor search results page. 

    Why is it important to get a second opinion from a different Hydranencephaly doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Hydranencephaly doctor near Saint Louis, MO?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Hydranencephaly doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Hydranencephaly doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Hydranencephaly doctors near Saint Louis, MO?

    Look for the filter feature on the left side of the Hydranencephaly doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Hydranencephaly doctor that offers video calls?

    Look for the filter feature on the left-side of the Hydranencephaly doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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